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Record my lament; list my tears on your scroll--are they not in your record? (Psalm 56:8 NIV) Note from the Webmaster: After they mourned for a time, the Lord blessed Maryah's parents with another baby--a healthy child. To God be the glory forever and ever. |
On July 7, 1999 our seventh grandchild was born. 777. What an honor, He numbers for perfection. But alas, our grandchild was not perfect. Maryah (which we later found out means 'miracle') was born with Hypo-Plastic Left Heart Syndrome. That is where the left side of the heart (that does all the work, and handles the blood returning from the lungs then sends it through out the body) did not develop. She was jetted with her Daddy, who was all of nineteen at the time, to a hospital in Denver, Colorado, where they informed him that his daughter would die. They needed to go in and open the two top chambers of the heart to allow the blood returning from the lungs a place to go. Then they would put her on nitrogen to increase the pressure in her lungs, forcing the right side of the heart to do the work of the left. In the meantime, her mom was released early from the hospital so she could go to Denver to be with her new baby. My husband and I (Maryah's paternal grandparents), Maryah's mother, and her maternal grandmother, were flown by my husband's company to Denver that morning of the eighth. Maryah was stable and the decisions her parents had to make were not ones I would have wanted to make. But make them they did and went with a transplant. She was transferred to Children's Hospital there in Denver, evaluated, and placed on the transplant list Then the wait. While waiting, I got on the internet, into a Christian chat room, and asked for prayers for our little Maryah. The response was so great! I had so many e-mail and ICQ's from the people praying for her it was just incredible. I made some super good friends from this and wouldn't have if this hadn't happened. On November 11, the doctors went in to do a cath on Maryah. When they came out to talk to us, the news was more than we had expected. They informed us that the left side of her heart had grown! They couldn't explain it, but it had grown and they wanted to take her off all medication to see if she could make it on her own. We knew! God had begun a healing in her because of all the prayers that had gone up for her and her mom and dad. We praised Him right then and there. The doctors had to admit that it was the only way it could have happened. Today, she is doing very well. They are awaiting her lungs to heal and the pressure to drop to normal ranges with in a few weeks. But we know that our Father has done major healing in her and will continue until she is finally well enough to come home to Wyoming. Thought I'd let you know that Maryah and Dad and Mom are home. The doctor said they could come home if they promise to be back in Denver every Monday for checkups. And on December 17, they are to return for a lung cath to check the pressure. If the lung pressure is where it should be, which is lower than the heart---they will take her off the transplant list all the way. Like I said before, the LORD has grown the left side of her heart, maybe so she can live long enough for a transplant. Right now she is doing great. But she is not thriving. She needs to gain weight; the pressure in her heart and lungs has to come down. They take into consideration all the bad things. There can be some, but when they add up to too many then it tells them that maybe the chamber isn't big enough for her to really live with. But, of course, they only found the chamber had grown in November, and it hadn't been there two weeks before. So maybe it needs more time to grow, or maybe it's only that big to give them more time to find her a new used heart. But whatever, GOD healed that part of her heart that wasn't there and now is. Please pray along with us that GOD will complete HIS healing of her lungs. You see, the doctors don't recognize the power of GOD and what HE has done and will do. We all feel that Maryah and her family have a definite purpose in GOD'S mighty plan for her and their lives. We pray that they will see what it is that GOD wants them to do to serve HIM. To all who have prayed for and care about Maryah, her parents are on their way to Denver's Children's Hospital, again, but this time it is because Maryah is suffering from congestive heart failure. Her little heart is no longer able to do the work it was intended for and a transplant is out of the question, her pressures are too high and the new heart would not be able to handle the load. Maryah is retaining fluids so badly that her liver has enlarged and her little heart is being pushed against the rib cage. She is suffering. She is having a hard time breathing and the doctors can't figure out why. This is hard to see your grandchild suffer so and to see your children go through something you've never gone through. Please, pray for her parents and Maryah. we all need the strength, only the LORD can give us. This is a very hard letter to write. Maryah is now with the LORD. She passed peacefully after having a lot of problems the last few weeks. Her mitro valve was too small and caused fluid to back up into her lungs. She was suffocating. She was in heart failure. The plan the doctors came up with was to take the mitro valve out and replace it with a mechanical one, if they could fine one small enough. If not they would take the pulmonary valve for the mitro valve, and replace the pulmonary one with a frozen one. They took her off the ventilator and sent her to a room after about twenty hours in ICU. Not two hours after being in a room, she was showing severe signs of fluid building on her lungs and she was in a panic with fear because she could not breathe well. She went down to thirty-four percent oxygen in her blood and they began facemask tight to her face for almost an hour before they were able to get her back into ICU. In that length of time, she suffered another stroke. She began with a high fever, peaking at 106.5, had cardiac arrest twice, then stared seizures. Upon doing the CT, they found she had suffered vision loss, and motor skills. Her brain was swelling, and the urgency for a bolt in her head to relieve the pressures was needed and maybe take out a part of skull. Then, if everything went OK, they'd try to do the heart surgery, but with all the strokes she was having they really didn't feel she make it. The time had come to let her go. She could not be off the ventilator and she was getting worn out. When the doctor unhooked the support, she passed peacefully in her parents' arms. She was ready to go and we all know that the LORD was there with us when she went. Thank you for all your help and your love and prayers. I pray all is well with all of you and your families. Maryah does look at peace in her dress that her mother and great-aunt made for her for the day she had been dedicated to the LORD. We know she is now happy and at rest in heaven. You know, with all of us who have lived a long life, even though we are Christians, only GOD knows what is really in our hearts, and we will be judged accordingly. But little ones, like Maryah, are as pure as the day they were born and we know without a doubt where they are! I know she is out of pain, discomfort, and even sings praises to our LORD right now. In that, I envy her. To sing in GOD'S actual presence is an awesome thought. 
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Grace and peace to you from God our Father and the Lord Jesus Christ.
(2 Corinthians 1:2 NIV)
